Duchenne Nurse Educator

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Job description

Why Sarepta? Why Now? The promise of genetic medicine has arrived, and Sarepta is at the forefront. We hold leadership positions in Duchenne muscular dystrophy (DMD) and limb-girdle muscular dystrophies (LGMDs), and we currently have more than 40 programs in various stages of development in gene therapy, RNA and gene editing. In 2023, we launched our fourth therapy and the first ever gene therapy to treat Duchenne. We're looking for people who see unlimited potential in themselves and who are motivated by an unwavering commitment to patients. What Sarepta Offers At Sarepta, we care deeply about all the people in our community and believe in the importance of supporting them in all aspects of their lives. We aspire to maintain a culture that acknowledges people bring their whole selves to work, and we will strive to help everyone in our community integrate their work and personal lives while maintaining productivity. We are committed to offering a range of benefits and work-life resources designed to support people in the following areas: Physical and Emotional Wellness Financial Wellness Support for Caregivers For a full list of our comprehensive benefits, see our website: The Importance of the Role The Duchenne Nurse Educator (DNE) works in a highly visible, dedicated team environment to support health care providers (HCPs), patients, and caregivers through education on Duchenne Muscular Dystrophy (DMD), the infusion process of our approved therapies, and Sarepta patient support programs. This role develops relationships with HCP's, patients, and caregivers to support both the HCP's and the families through their journey on therapy. The DNE also works closely with their cross functional partners to ensure ongoing compliance with therapy. This position will cover the Mid-Atlantic Territory: Pennsylvania, Maryland, District of Columbia, Virginia, West Virginia, Delaware The DNE is assigned to special projects as required, such as providing nurse triage support during 24-hour on-call shift coverage. Triage support utilizes the nursing process to liaise with patient care teams to evaluate patient safety needs over the telephone. On this special project, the DNE serves as a connection between patient care teams and an expert physician with deep Duchenne and precision medicine expertise and provides in the moment guidance to patient care teams, if needed, while adhering to organizational policies, procedures, and guidelines. The Opportunity to Make a Difference Serve as recognized expert on DMD education (Genotype, deletions, disease process, etc.) Stay current on the DMD environment. Collaborate with internal cross functional partners and external partners to ensure ongoing support to HCP's patients, and families. Educate providers, infusion nurses, patients, and caregivers on Sarepta's approved therapies for DMD and the infusion process. Present to audiences compliantly. Conduct Programs for disease state awareness. Assist to improve infusion experience for DMD patients by providing ongoing support to the infusion nurses and sharing best practices. Work with SareptAssist team and specialty pharmacy to ensure smooth transition from infusion center to home infusion. Support to patients and families as requested by case manager or health care provider. Attend advocacy meetings and represent Sarepta at industry conferences. Travel to training meetings, medical offices, and home health agencies, as necessary. Other related duties as required. Special projects including triage nursing support: Triage telephone calls from patient care teams requiring medical guidance post treatment during 24-hour on-call shifts. Intake and interpret different nuances of medical information to triage calls appropriately. Communicates and acts as a liaison between patient's care teams and an expert physician in a confidential manner. Documents calls according to established guidelines (PV reporting). Directs the patient care team to the proper Customer Service Center (e.g., MedInfo, SareptAssist) based on the topic of the call. Requires on call coverage to provide day, night and weekend coverage. More about You Registered Nurse with a bachelor's degree (BSN/BS/BA) from an accredited school. At least 5 years of relevant experience; Infusion, Neuromuscular, Pediatric Neurology, or other specialty experience preferred. Highly interested in educating on the disease state of Duchenne Muscular Dystrophy and working with health care professionals to support patients and families. Demonstrates team-based skills working with cross functional partners, both internally and externally. Embraces and adopts modern technologies and techniques. Comfortable presenting in group settings, live, and virtually. Empathetic and friendly with effective communication skills. Willingness to work as part of a team in a fast-paced environment. Embraces continuous learning/seeks knowledge. Valid driver's license and in good standing. Requires rotating on call coverage 24 hours/7 days per week. Ability to travel up to 60% within assigned territory is required. Must be able to travel to meetings, and educational programs as necessary. What Now? We're always looking for solution-oriented, critical thinkers. So, if you're comfortable with ambiguity and candor, relish challenging yourself, and place kindness and integrity at the forefront of how you approach your peers and work, then we encourage you to apply. Blank This position is remote. However, you will be expected to work on site at one of Sarepta's facilities in the United States and/or attend Company-sponsored in-person events from time to time. The targeted salary range for this position is $125,600 - $157,000 per year. Sarepta is making a good faith effort to be transparent and accurate around our hiring ranges. The salary offer is commensurate with Sarepta's compensation philosophy and considers factors including, but not limited to, education, training, experience, external market conditions, criticality of role, and internal equity. Candidates must be authorized to work in the U.S. Sarepta Therapeutics offers a competitive compensation and benefit package. Sarepta Therapeutics is an Equal Opportunity/Affirmative Action employer and participates in e-Verify.

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